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Links, reports and guidance to inform our work

Resources for RSC

The following documents, reports and links to information are helpful in the work we do. These resources are used by members of the community to better inform themselves, when working with health professionals in the NHS and Provider organisations.

Statutory Guidance

These documents are key in understanding the ideology of the Five Year Forward View and how the changes will be implemented. It will help you understand what the aims of the various programmes are and how they will collectively deliver the 5YFV.

Chapter 2 of the 5YFV is about empowering patients and engaging communities. There are many programmes being implemented in our health service that focus on prevention and changing behaviours. These programmes will help us better manage our conditions through knowledge & self-management, using technology and innovation.

You can also find out more information on public and patient involvement via The Involvemnt Hub website, click here to access the site.

Involvement in Commissioning

Patient Carer and public usually means all service users, carers, family and friends. These documents are helpful in understanding the framework of participation and what you should expect in terms of support from the NHS or hosting organisation.

It builds knowledge and develops self confidence in working with Health Professionals. It empowers patients to share power in decision making. Helpful when working with CCGs or in any commissioning environment.

Patient, Carer & Public Involvement

Joining a PPC is a more direct way of influencing services in primary care. The National Association of Patient Participation provides comprehensive information on involvement. As GP Federations are formed in the New Care Models, so will PPGs evolve. Clinical Commissioning Groups are directed to support PPGs, it will therefore be prudent to join both organisations to have critical impact.

It is necessary to have an overview of the GP contract and understand the tripartite relationship between the CCGs, GP practice and the patient community.

Sustainable Transformation Partnerships (STP)

A very useful report from the King’s fund, explaining in layman’s terms. The video clip also brings it up to date.

STPs cover all aspects of transformation spending. The programmes are the vehicle by which the new care models will be delivered. Each STP programme will be designed for their locality, but in general they will look to reconfigure hospital trusts by creating centres of excellence, whilst also consolidating common functions between trusts. They will develop GP Confederations, together with plans to upskill staff in practices, pharmacy and social care.

As service users, it is vital that we play a part and have a say in proposed changes. Most STPs will invite patients, carers and public to be involved.

See this excellent article by Mark Doughty about patient & public involvement in STPs.

National Voices

Inverting Patient Involvement

National Voices is the coalition of charities that stands for people being in control of their health and care” Click here  to visit their site and click here to read July’s newsletter.

Patient and public involvement in research and engagement’

Here is a study by Mader et al about patient and public involvement in research, it is about Patient Led Research and outlines the reasons why PPI in research is so important.  The Patient Led Research Hub (PLRH) is a new initiative hosted by the Cambridge Clinical Trials Unit. The PLRH supports research ideas as proposed by patient organisations, providing resources and expertise in research design and delivery. Here are a couple of quotes of interest pulled from the study:

“There is a clear mismatch between research ideas that patients prioritise (quality of life), and those actually investigated (drug development)”.

“This is because research is so expensive, generally only drug manufactures can ford to fund it.  So the drivers become skewed!”

“Although patients are frequently consulted, evidence that their involvement influences the research agenda remains limited. We propose a novel model that allows patients and the public not only to propose research questions, but to design, initiate and deliver their own research with all the necessary support from research professionals”.

Get Involved

Apply online if you have a long term condition, injury or disability and are working as partners with health care professionals to improve services.

Apply Online

Acronyms and Jargon

We have a guide of all the common Acronyms and Jargon in Health Services.

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